Notes From Supergirl

My Diary from the Trenches

Day 654

March13

Well most of you have heard by now that my biopsy results came back today and were great! I am in complete remission with normal chromosomes and 100% donor cells. My blood counts are also working their way up and my platelets are at 150,000 for the first time in over 2 years!!!! That was one of the numbers I have been waiting for. I was so hesitant to say anything about it because I didn’t get the paper report about the chromosomes today. My doctor spoke to the lab on the phone this morning and told me that he confirmed that everything was normal. The last time I found out about the chromosome issue I was told that everything was fine and then went in the next week to find the paper report had delivered the bad news. So I hounded my doctor and he was clearly frustrated that I didn’t believe him! Thus my delay in spreading the news was because I was afraid to share something great and have it come back to bite me in the behind. But Brian had spread the word on Facebook before my doctor even finished explaining things to me, so there was no taking it back.

I think that I was stunned at first. I was thrilled, obviously, but having one of those moments where you want someone to pinch you and tell you if it’s real. It wasn’t until I started to write a text to my friends that I burst into tears of joy realizing that I might actually get my life back. Everyone is asking me about when and how I’ll celebrate and I’m so afraid of doing that because I don’t want to jinx anything! But I realize that this is a moment worth celebrating and savoring. So any ideas for a party are welcome! A vacation would be wonderful.

I have been feeling a lot better lately. I finally kicked a sinus problem that had lasted for a couple of weeks. Lately I’ve been running 3-4 miles a couple of times a week. Yesterday I got to run the Iron Girl course for the first time this year with Roseann. She then took me to the future home of the Healing House we are working on. It was pretty amazing.

My doctor has cleared me to get out a little more and it is definitely helping to improve my mood and outlook. I did my first grocery trip last week, have gone into a couple of stores to shop and eaten food from restaurants. These are little things that are now big adventures to someone like me who has been housebound for the past 3 months. Tomorrow I am going to be brave – and VERY cautious – while I go see Ty’s play at his school. My doctor probably wouldn’t approve but I plan to stay behind the crowd and not mingle too much.

Life is definitely good right now. I think a lot of my anxiety will settle now and I can focus on feeling better and taking care of my family. Thank you all for continuing to follow along. I’m sorry I haven’t written much lately but I haven’t wanted to. I have been trying to avoid thinking about all of it while I waited for my test results. Writing about it would give me too much time and space to ponder. It was better for me to absorb myself in other things these past couple of weeks.

One more time, I must thank my donor. It is weird to think that my bone marrow has now been entirely replaced by her cells. All of it is amazing and overwhelming. Thank goodness for her generosity, thank goodness for science and thank goodness for all of the miracles that occur each day!

4 Comments to

“Day 654”

  1. Avatar March 13th, 2012 at 10:29 pm Chip Says:

    Savor the view from the top of the mountain after that long, hard climb. I couldn’t be happier for you.

    Chip


  2. Avatar March 14th, 2012 at 6:25 pm mike and peg Says:

    great news – just what we have been waiting to hear. we can hear you making that big sigh of relief all the way over here in Sparks!


  3. Avatar March 15th, 2012 at 11:45 am Kim Says:

    Literally got chills as I read the last parts of this post. You have been so amazing thru it all and I am so happy to hear that all is going to be ok!! :) What a gift! XOXO


  4. Avatar March 16th, 2012 at 12:31 am Jackie Says:

    Such WONDERFUL news, Jess. Thanks so much for sharing your journey. Indeed, this is a time to truly savor and enjoy. Jump for joy! Shout out in glee. I’m doing my happy dance for you out here in CA. Congrats on the great news!! Hugs.