Day 578
All good news from the doctor this morning. My platelets are up into the 90′s, red count normal and white count was down to 3.1, but he said that is perfectly normal. It will fluctuate for a while as my body adjusts. In other good news, he said that if my bloodwork remains stable, as of next Wednesday I will only have to go back once a week for a checkup. Additionally, the central line that I came home with, which is in my shoulder area, will also be taken out in two weeks. That means I can get back to yoga!!!
The doctor was encouraging me to do as much exercise as I am comfortable with and was thrilled that I have the ability to do it inside my home. He said that the risk with going outside is things like leaf mold, construction areas, etc. Well, most of you know that I live in what I would say is a leaf mold infested area, so I will keep my running to the treadmill until the spring. I have my eye on a 5K at the end of April. That is the goal I will be working towards. However, as the doctor stated very eloquently today, this time may be long and boring and make you go stir-crazy, but when you feel good you take risks and those risks are what can damage the progress. This is a long-term investment in my future and I just need to stay healthy and safe. I’m in complete agreement, so I’m not pushing myself to do anything he doesn’t think is a good idea for me.
I also asked lots of questions about how we are tracking the status of all of this; i.e. when/how do we know if this worked? The answer is that one month after the transplant (around the 2nd week of January) I will have a blood test that will identify the percentage of donor cells versus my cells. It takes about 2 weeks for those test results to come back – talk about anxiety!!! They would expect there to be about 70-80% donor cells at that point. We will continue to do these tests each month. On day 100 post-transplant (sometime in March), I will have my first bone marrow biopsy in which they will analyze the cytogenetics again. This will be the critical test in determining if my bad chromosome has been wiped away. Hopefully, I’m well on my way with my running by that point because I don’t know how I will pass the days waiting for that test result to come back! All I know is that if – no, make that WHEN – I find out it’s gone, we are celebrating big time!
So all is good for now. We got a Kinect for Christmas so I’m off to try Dance, Dance Revolution to build up my cardio