Notes From Supergirl

My Diary from the Trenches

Day 571

December21

So let’s start with the good news … there was progress in the bathroom today ;)

Okay, now for the GREAT news … they are planning to send me home on Friday! Ah!!!! I’m honestly afraid to even to talk about it because I don’t want to jinx anything. My doctors walked into my room this morning and said, “well there’s our superstar patient” and I was quite curious what I had done. My white count jumped overnight from 0.2 to 1.9, which is huge. They took me off of all of my IV medications today and started planning for me to leave on Friday. I’m completely elated, but nervous as well. I guess it’s hard to believe it could really happen and I just don’t want to get myself too excited about anything until I’m actually at home with all of my boys and I know it’s real. So please just keep sending those positive vibes – because they’ve obviously been working! – and let’s all keep good thoughts that everything stays on course.

For as emotionally uplifting as today was, it was ironically a hard day physically. When your white count comes up, your red counts tend to slump a little so I needed a red blood transfusion today. It’s nothing traumatic. I just take Tylenol and Benedryl and have a plain old transfusion. But I was having pretty bad throat pain today so it was really hard to eat. I’m also having some bone pain from the neupogen, which is very common. My bone marrow is very active right now and you’re likely to feel that. They say that as the white count comes up higher, the throat pain should diminish rather quickly and since yesterday was my last day of neupogen, that should also feel better soon too. Basically, by Friday I should be in decent shape. I avoided taking pain medication for most of the day, feeling like it would somehow mean that I wasn’t ready to go home on Friday. And then I just realized that was silly. Around six when I couldn’t bear to swallow anything, I finally took the Dilaudid and felt better within 10 minutes. I’m looking at it now like I have one solid day of rest left and I should take advantage of that. My body is doing what it needs to do and if I feel like sleeping all day, that’s okay. I probably won’t get to do that once I get home.

I had a great visit with Kelli today as well as with Katrina from Ulman Fund and Roseann. Lots of exciting stuff to talk about and lots of good things ahead.

I’m off to rest for the evening. Just think, two more days and I might have regular internet access. Bonus.

2 Comments to

“Day 571”

  1. Avatar December 21st, 2011 at 10:41 pm Chip Says:

    Jess -

    Now that WAS a great day. It is really terrific to hear that things are falling into place, at last. Good for you!!

    Chip


  2. Avatar December 22nd, 2011 at 12:28 pm Meredith Says:

    That is wonderful news! Praying that all continues to stay on track and that you are home with your boys on Friday afternoon!