Notes From Supergirl

My Diary from the Trenches

Day 535

November15

I’m back from Disney and back to the chaos of our renovation and the loads of doctors visits. Despite a chest cold that I am getting over, believe it or not, I am savoring the madness of it all. Our trip was wonderful. Although a little stressful taking two young kids around Disney, they did amazingly well and Kieran, as he declared after our first day said, “Mommy, I did great at Disney – I didn’t run away!” All in all we soaked up as many rides and adventures as we could and still didn’t have time to get to everything. There were lots of thrills mixed in with smaller, special moments. Brian had a work meeting the night of the Ravens game and Kieran was passed out sound asleep, so Ty and I ordered Hard Rock Hotel Deluxe room service (delivered on a purple leopard-print tablecloth) and watched the game in style. I have tons of photos and videos that I plan to put into some sort of collection. That will be a good project for the next couple of weeks. We were also so excited to meet up with our friends Robyn, Paul and Phaedre there and all of the kids had a blast.

As for the medical update, prior to leaving, a CT scan had showed a couple of fungal spots on my lungs (nothing they were concerned with). They put me on an antifungal medication just as a precautionary and a repeat CT yesterday shows that there is improvement there. I’m getting over a chest cold but feeling much better than I was a few days ago. It’s amazing what a little stress will do to your immune system. I think the anxiety of work, school, kids, doctors and everything else on top of a rushed trip to Disney made me susceptible to a little more stress than I am used to. In the end, it was all worth it.

However, now my doctors are not in favor of me traveling for Thanksgiving. I will go in for transplant one week after that and they want me to be as healthy as possible. I’m allowed to live my life, but I should be avoiding sick people and large crowds for the next two weeks. So I will be laying low and doing a lot of cleaning, organizing and yoga to try to get ready for this next phase.

posted under The Daily Record
3 Comments to

“Day 535”

  1. Avatar November 16th, 2011 at 5:15 pm Janet Thieme Says:

    I’m glad you had a great trip! We’re bummed we’ll miss you for Thanksgiving though. Have a great holiday at home and we’ll see you next year for sure!


  2. Avatar November 27th, 2011 at 3:44 pm Chip Says:

    Jess -

    What day are you having the transplant? All systems still a go?

    Chip


  3. Avatar November 27th, 2011 at 10:20 pm Jess Says:

    I’ll post more tomorrow, but as far as I know I am still scheduled to go in on Friday, December 2nd. I still have more tests up to Wednesday of this week so I’m not sure if they are waiting on my last test for final confirmation. Most of this also depends on testing on the donor’s side.