Notes From Supergirl

My Diary from the Trenches

Day 423

July27

This week has been pretty rough so far. I went for bloodwork yesterday and I am at the bottom as far as my platelet count – all to be expected. But I have been feeling pretty awful. Lots of light-headedness, fatigue, some nauseau and overall almost no energy. I suppose this is just the effect of the chemo and where my blood counts are but I haven’t felt this bad in a while, so it feels particularly awful. I spoke to the doctor about it and she didn’t seem very concerned. She said it is a result of my low blood pressure (normal for me), still being anemic, where my counts are and the heat. I am trying to accept that answer although I have had some periods of high anxiety and there is a fuzzy line between what is real and what is produced by stressing about it. As I told my friend, I thought I was over all of this by now. I thought I was better equipped to let these bumps in the road roll off my back, but they still stress me out.

I’ve been hearing a lot about cancer lately. The nine-year old niece of one of Brian’s co-workers was just diagnosed with a form of leukemia and facing a really rough fight so far. At an appointment the other day, a woman was telling me about another lady that worked downstairs and is going through the same course of treatment I did last year. And then this morning I opened an email only to learn that someone I had read about in January – a true cancer warrior – passed away yesterday.

I have been doing all of this “soul-searching” and coming to terms with the idea that we all have our place and purpose and that worrying about any of it is wasting time. In that regard, I have dramatically improved over my past experiences. Although I get anxious or worried or flat-out afraid sometimes, I can much more quickly let it go. I think that having been reminded of cancer so much in the past two weeks, as well as knowing that I have another biopsy coming up, all of a sudden I am focused on cancer again. I don’t think I live in denial about it, but I live as if I am alive and cancer-free and have the rest of my life in front of me. But I still hesitate making commitments to go places or do things because I don’t want to let other people down just in case I might find myself back in a hospital bed. I think I try so much to avoid the fearful thoughts that I do drift into denial and I know that’s not healthy either. As I described in a much earlier post, in meditation I have learned that when thoughts cross our mind, we must acknowledge they are there and then let them pass. Trying to fight against them only makes them worse. So today, I embrace the fact that I hate feeling sick and run-down and it scares me, but I will not dwell on it. I did more today than I did yesterday and hopefully tomorrow is a little better as well.

posted under The Daily Record
4 Comments to

“Day 423”

  1. Avatar July 28th, 2011 at 12:17 am Chip Says:

    Hey Jess -

    I doubt that anyone who has not had cancer can truly understand how it feels. But let me offer an observation. Back when you were really sick, you were on the offensive against the disease. Even when you felt bad physically, you were fighting and that helped your mental state. Now that you have had a stretch of feeling good, you are playing defense; i.e. you want to maintain the status quo of feeling good. When you play defense, you are mostly reacting to what your opponent does, which implies that the opponent is in control. You gotta reclaim control. Don’t waste your time and energy dwelling on what could happen. Get back on the offensive and reclaim control of this fight. Of course you want it to be over but it isn’t yet. Kick cancer’s ass.

    Chip


  2. Avatar July 30th, 2011 at 2:18 am Heather Says:

    Is it me or is Chip just really excited about football? Fine then. I will continue with Chip’s football reference and let you know all of us cheerleaders are still here on the sidelines waving our pom poms! Gooooo Jess!!


  3. Avatar July 30th, 2011 at 9:53 am Jess Says:

    Thanks guys. And yes Heather, I think Chip is excited about football starting ;) But I’ll take the analogy. I need a little motivational speech once in a while to remind me to keep fighting.


  4. Avatar August 2nd, 2011 at 1:45 pm martha Says:

    The ticket has cost alot…The game is worth it. Pom pomming in Massachusetts…