Notes From Supergirl

My Diary from the Trenches

Day 159

November6

Long time no blog. I’ve been busy and tired, all in a generally good way. On Thursday I saw my doctor for my follow-up appointment and he cleared me of wearing the mask and I’m free to eat what I want now. The only restriction is no raw shell fish for the rest of my life, so no more raw oysters. I don’t often indulge in those so I think I’ll be okay. Sushi is fine as long as there is no shellfish involved. Although he was quick to clear me of everything, I haven’t gone anywhere in public yet except for the hospital. I still plan to stick close to home for at least another week or so. I go back in again this Thursday and will, as always, be curious to see where my counts are. Last Thursday my platelets had come up to 38,000 which was a higher jump than expected. I’m hoping that this Thursday they will be working there way up over 50,000 and towards the normal range.

The first week at home was good but exhausting. I had planned to spend my days resting and catching up on things but on Wednesday I had to pick my 2-year up early from school because he was running a fever. He ended up having a double ear infection and had to stay home the rest of the week. Between taking care of him and two 8 am appointments Thursday and Friday at the hospital, it was hardly relaxing. By last night I felt like I was sleep walking through dinner. Next week everyone will go back to school and I hope to get some rest in.

Everything else is going well. My anxiety is letting up a little bit. I have had a mild pain that comes and goes in my ride side but the doctor didn’t seem concerned about it because all tests looked good. Just to be sure he sent me for another CT scan on Friday but I haven’t heard back on those results yet. Knowing that he wasn’t overly worried about it, I haven’t been worrying about it either. My first thought was, of course, my liver again but I am happy to report that my temperatures have been perfectly normal since coming home and there are no other signs of infection. As several people have told me, the unfortunate result of this experience is that every little ache and pain or sign of fatigue will probably trigger some fear of something awful and it is something I will just have to get over. I can’t live in fear of my health and I truly believe that a healthy mind leads to a healthy body. So with that, I am focusing on my living my life right now and that’s it!

posted under The Daily Record
3 Comments to

“Day 159”

  1. Avatar November 6th, 2010 at 11:16 pm Chip Says:

    Hi Jess -

    Wow…in the overall context of things, that’s a super encouraging report. It kind of sounds like you don’t want to jinx yourself by feeling too optimistic! Other than the fatigue, which anyone with 2 small boys + Brian would feel, the only symptom you reported was the intermittent pain in your side, which will likely resolve itself when you have your weekly fart on Tuesday.

    I’m really happy for you. Rejoice in the normal days.

    Chip


  2. Avatar November 7th, 2010 at 4:54 am Holly Says:

    I am so happy that you are , at home, no mask, taking care of your boys, and being a tired mom by dinnertime (just like the rest of us :) )! xoxo


  3. Avatar November 8th, 2010 at 6:57 am Robyn Says:

    Jess–
    It was great seeing you yesterday–just like normal :-) Happy to have you around. Hopefully, we can continue the tradition of setting aside time to see each other and taking the time to sit and talk. I feel like I learned some valuable lessons sitting with you in your hospital room. Some of them, I’d like to hold on to.

    What were a couple of your favorite meditation books? I’d like to try and incorporate some mind-body calming strategies…