Notes From Supergirl

My Diary from the Trenches

Day 111

September19

I didn’t realize I had skipped writing for so many days. That’s a good thing, obviously, because it means I’ve been busy enjoying my life or have been too exhausted to say anything meaningful by 8 pm. Things are going well at home. My anxiety has calmed dramatically though I’m still curious to get to the hospital tomorrow and see where all of my blood counts are. I am going for a platelet transfusion and I suspect they are pretty low by now. Maybe I’ll get lucky and it will turn out my body has started to produce more on its own but I’m being extra careful all the same. I also go back Thursday for some more tests in preparation for the bone marrow transplant. Quite a few people have asked me when I will actually go in for the transplant. The short answer is that I don’t know yet but anticipate it being the second to third week of October. I will have to do another bone marrow biopsy first and this won’t be scheduled until my platelets are at 100,000. This could be as early as next week or it may take some time. According to the protocol I am on, I will go in for transplant 2-4 weeks following the biopsy. At this rate, I will probably will end up being home for a total of 3-4 weeks before being re-admitted.

I truly am savoring every minute of my time at home. In between the mundane (but currently very appreciated) day to day tasks, I have been doing lots of baking, cooking and reorganizing. I’m setting up a space for Ty to do art, I made Kieran’s room more “2-year old friendly” and I am plowing through new recipes. Of course I am also soaking up every hug, laugh and cry from the kids. Being here to comfort them when they wake in the middle of the night or pick them up from school is all of the healing power I need. I don’t think I ever realized how much being a mother meant to me. I can see now that it means almost everything. There are a million things I want to do for myself on the other side of this but I am grateful for having my family to pull me through right now.

Before I go, I want to thank all of the people who have been sending me comments recently. It’s funny to think I am inspiring anyone when there are days I have to literally talk myself through this. I appreciate all of you saying that. I also want to thank Kim for the suggestion of turning this blog into a book one day. That has certainly crossed my mind. I even had a fantasy of sitting on Oprah’s couch talking about it, but darn it, Oprah had to go and end her show! Oh well, there’s always Good Morning America?!?! In all seriousness, if I’m making a difference in anyone else’s life besides my own while I go through this or beyond, then that is only more for me to be grateful for and certainly part of a beautiful gift in this really ugly package.

posted under The Daily Record
6 Comments to

“Day 111”

  1. Avatar September 19th, 2010 at 8:52 pm Melly Says:

    Jess, you are making a difference in the lives of everyone you know, everyone who reads the blog, and all of your healthcare team as well. Never doubt it.


  2. Avatar September 19th, 2010 at 9:21 pm Kim Says:

    Jess – I think everyone is inspired, first and most obviously, by your amazing positive outlook on this whole ordeal and second by your courage to share this personal and private journey with all of the rest of us. Both are amazing and I know I speak for everyone who reads this blog when I say “thank you” to you… Keep enjoying the days and reminding us that we should too!!! :) Hope to see you soon.


  3. Avatar September 19th, 2010 at 9:23 pm Kim Says:

    PS – I think you’ve said it before, but I really like your term “a beautiful gift in a very ugly package”… hmm, a subtitle in the making perhaps?? :)


  4. Avatar September 20th, 2010 at 5:29 am Holly Says:

    Jess, I think it’s great you’ve been too busy enjoying life to blog! Your experience and outlook has certianly been insprining to me as well each time I see you and every time I read your blog,…Supergirl!


  5. Avatar September 20th, 2010 at 9:09 pm Robyn Says:

    I talked to you today so I KNOW that you were wrong about your counts–your body is definitely kicking into high gear. You GO girl! Tell me when you want to try and schedule your bracelet party. This Sunday? Next Sunday is the Honey Festival at Oregon Ridge (want to come??). I love being able to contemplate making plans with you. I see the light at the end of the tunnel!


  6. Avatar September 22nd, 2010 at 10:31 pm Anya Says:

    There is nothing more powerful that a hug from your child or more magical than just watching them be.. Jess, I’m so thrilled your are getting some good time at home to soak up all the perfectness of your precious boys (seriously Kieran is just too cute!!). So wonderful to see you today!!