Notes From Supergirl

My Diary from the Trenches

Day 23

June23

Today was awesome. I ran through a whole list of questions with the doctor first thing this morning and I was pleasantly surprised with all of her answers. As far as how long I will be home for, it could be anywhere from 2-4 weeks. Everything depends on my blood counts that will tested weekly and then they will perform another bone marrow biopsy to see if any of the cancer cells have returned and at what stage. The results of that test will determine the course of my future treatments. I had also been told that I wouldn’t be able to travel at all because I had to stay within an hour’s distance of the hospital in case I started to run a fever or had any sort of emergency. However, she said that if my counts are good, she didn’t see any reason that I couldn’t take a vacation. So guess who’s getting out of town for July 4th? And thank goodness, because we have a family tradition to spend it at our vacation house in the Poconos and Ty has been telling me since I left that we would “pack for Milford as soon as I got home.” Now, not only do I not have to break his heart, but he’s right, we will get packing.

Lastly, I was asking about swimming and yoga and weight training and a lot of the other activities I do that are limited by the PICC line in my arm. She said that if I am going to be home for 4 weeks, we could just remove this when I leave and insert a new one when I check back in. That too, was awesome news. I won’t have to worry about picking up Kieran now or having it flip in downward dog or wrapping it up each time it could get wet. It means complete physical freedom.

More good news? It’s 9 pm and I have not had 1 fever today!!!! I also have eaten 3 rounds of very light solid foods and not had any debilitating cramps or emergency trips to the bathroom.

On top of all of that, I had a great visit with Matt followed by an in-room chair massage from my wonderful sister-in-law, Stephanie. She worked out a terrible pain I had developed in my shoulder from sleeping in awkward positions under the cooling blanket over the last three days. The massage also, of course, generally just helped to decompress from everything. When my brother got here we went for a walk down 8 flights of stairs to go check out the nurses garden across the street. We then came back up the 8 flights of stairs. Unfortunately I’m not quite in Rocky-style condition right now. Soon though.

Before signing off I wanted to share something Kay emailed me yesterday.

Be kinder than necessary,

forĀ everyone you meet is fighting some kind of battle.

Live simply,

Love generously,

Care deeply,

Speak kindly,

and pray continually.

Life isn’t about waiting for the storm to pass…

It’s about learning to dance in the rain.

posted under The Daily Record
10 Comments to

“Day 23”

  1. Avatar June 23rd, 2010 at 10:03 pm Robyn Says:

    All such great news! I can’t wait to see you–and I’m thrilled that I will get to visit you out of the hospital soon, too.


  2. Avatar June 23rd, 2010 at 10:12 pm Melly Says:

    Great news all around, Jess. can’t wait to pay you a visit at home very soon.


  3. Avatar June 23rd, 2010 at 10:15 pm Gina Says:

    Awesome Jess! When you get home, I will come over for a Reiki session while the kids play. I am sure lots of “good news” feels so very good after hearing “not so good” news for so long!


  4. Avatar June 23rd, 2010 at 10:20 pm Jess Says:

    Gina, I would love that. My nurse did Reiki on me the other day and found it very relaxing.


  5. Avatar June 23rd, 2010 at 10:20 pm Gina Says:

    hey jess—i just got Melissa Etheridge’s “Awakening” CD out from the library. I like her but didn’t know what the content was. I open up the CD and the first two lines of the jacket read “After I was diagnosed with cancer, I spent 10 weeks on chemotherapy where I was forced to be still. Although I believe this medical practice of chemotherapy to be rather barbaric, I walked away from the experience enlightened.”

    Thought you might enjoy it. I will make a copy for you.


  6. Avatar June 23rd, 2010 at 10:56 pm Adele Says:

    This is wonderful news!!!!!


  7. Avatar June 23rd, 2010 at 10:59 pm Kim Says:

    Awesome, awesome, awesome. So very, very happy for you Jess. :) And thanks for sharing the poem – I am posting it to fb right now b/c I love it so much. My dad was very into Reiki, he used to do it for others as well. Glad to see others enjoy it too. And glad to see you will be able to pick up that little darling of yours – lots of healing will come from that alone – though it is a work out in itself! He is such an adorable little teddy bear! So when is the big day?


  8. Avatar June 24th, 2010 at 9:10 am Chip Says:

    Jess -

    All of your fans are very happy today. We are rooting for you just like we’d root for the Ravens. Today it feels like just like it would on Monday morning if the Ravens beat the Steelers 56-0; i.e. really good.

    Chip


  9. Avatar June 24th, 2010 at 9:49 am amy Says:

    Can’t wait to see you in MILFORD!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!


  10. Avatar June 24th, 2010 at 10:37 am Tatiana Says:

    Awesome news!