Day 558
I’m sorry I didn’t update anything yesterday. I was having a terrible time with nausea and the third medication they gave me in the afternoon knocked me out for the rest of the day. Which was actually a good thing because I slept through my second dose of radiation. The first dose, in the morning, ended up being very emotional for me. I couldn’t stop crying when I got off the table. I think it was just the reality of everything I am going through and praying that this all works. I NEVER want to have to do any of this again. Giving 2 years of my life to fighting this cancer feels more than sufficient to me!
But onto today … my lovely new donated stem cells were given to me around 11:30 and the whole process didn’t last more than 40 minutes. Once again I was given IV Benedryl and steroids to prevent a reaction so my head remained in the clouds most of the day. Although the medications are helpful at relieving symptoms, I hate the way I feel when I am on them. The nausea seems better today and I’ve been able to eat a little, so hopefully I will be able to stay away from any of those meds for a while.
Getting back to the transplant, I was somewhere smack in the middle between excitement, nervousness and that good old “how did I get here?” feeling. The process is as simple as getting some IV blood yet it carries these millions of cells that will change the entire function of my immune system. Crazy, huh? Brian took pictures and video so I’m sure they’ll show up somewhere.
What happens from here is that we wait for my counts to go down and then come back up again. Most likely my counts will be bottoming out early next week and then it will take a couple of days for them to start coming up. That bottom part is where I might end up with some issues and I just have to do the best I can stay healthy, infection free and up-beat. And for those of you waiting for gory detail updates, next week would be the week that could happen. But let’s hope it doesn’t!!! I hate to be a bore, but boring is BEST in this place!
Before I go I wanted to share this picture that Holly took of me on Tuesday. It is me waving goodbye to chemo – hopefully forever!
So thank you Holly for being there to share the great goodbye with me! Also thanks to Brian, a great crew from Ulman Fund and Roseann who all visited today. And thanks, as always, to my dad for bringing me snacks and magazines. There’s just a few things a girl needs in this joint – love, hope, snacks, something to read and something to exercise on – and all of you have given me those in one way or another.
One last thing I wanted to do is say an enormous thank you to my incredible donor, wherever you are! I only know a couple of details but the rules of the system are that the donor and the recipient are not allowed to be identified to each until one year post-transplant. What I can say is that my cells came all the way from Germany! For whatever reason, I had a feeling that they may have been coming from someone in our military and when I found at they came from Germany (where we have a huge base), the nurse practically confirmed it. So at this point I can guess that it is a woman from the Armed Services who may be stationed abroad. I could be wrong and it may just be a German citizen, but in either case, they are incredible to me for having gone through this process for a complete stranger half way around the world. I am forever grateful and quite humbled. I only hope I will be able to thank her in person one day.